Category: Stories

More Than a Diagnosis

October 20, 2021

Happy Spina Bifida Awareness month! My daughter Pearl has the most severe form of spina bifida called myelomeningocele. We found out at 20 weeks pregnant and had an in-utero surgery at 24 weeks to close the hole in her back. She was born shortly after at 28-weeks making her incredibly premature, weighing in at 2 pounds 10 ounces.  Spina bifida is a neural tube defect and is the most common birth defect. The nerves that innervate Pearls legs, bowel and bladder are damaged thus causing her to do things a little differently. She had a shunt placed in her brain at 8 months to combat hydrocephalus, water/swelling on the brain, a common experience with spina bifida.

Never Lose the Wonder – A Story About William Del Raso

April 29, 2021

William Del Raso is a curious little guy. Maybe that is why he decided to enter the world extremely early and surprise his mom and dad. In spontaneous fashion, Will arrived, weighing in at 1 pound 11 ounces. His twin brother Chase followed behind him, 44 minutes later. During Will’s 144-day-stay in NICU, the doctors […]

Providing a Lifeline

April 29, 2021

From the beginning of our married life, we believed in giving back to the people, organizations, and community we hold so dear.  We have found that when you give of your time, talent, and resources, you truly receive so much more than you give. Children and families have always held a very special place in our […]

The Tangible Gift of Joy

October 19, 2021

If joy was a tangible gift, then it would be the gift that Danielle “Ellie” Bentley gives away daily with her contagious smiles, her hugs, her tenderness toward other children and her gentleness toward animals. Each trip to the store is marked by Ellie’s friendly, “hello” to the patrons passing by. If you could sum up Ellie in one word, it would be nurturing.

For the Bentley’s, Ellie herself has been a gift. On August 24, 2017, Ellie joined the Bentley’s as a foster child. They were grateful to be entrusted to care for her and fell in love fast. A year later, when adoption became an option, Ellie officially became a Bentley.

Turning Challenges into Opportunities

April 29, 2021

Turning Challenges into Opportunities by Jane Eppard | 12.05.2020 When I opened the letter from Family Hope Foundation and read that he received a scholarship, I cried. From an early age, we knew that our child was going to need to be immersed in a wide variety of therapies to help him grow, learn, and work […]